“Appreciating, allowing and accepting the differences of motherhood when children have special needs. Life isn’t about waiting for the storm to pass. It’s about learning to dance in the rain”…by Vivian Greene.
This quote is on Amy’s blog about Dancing in the Rain. It’s perfect. She is all about it! Amy is an inspiration to many of the mothers I photographed for this exhibit. She’s the “go to girl” for information about services and help for families who have special needs children. When I contacted Amy about photographing her and her son Matthew for the exhibit. I asked what does he like to do, what do you like to do together?
The main thing he likes to do is take the garbage pails out to the street. He doesn’t just do his own, he does everyones in his neighborhood. So that’s what they did together. It was great to capture his sweet personality and his eagerness to please. I just followed his lead and I fell in love in the process:)
“We started to notice that Matthew’s development was a little “off” when he was 8 months old. He was “missing milestones” as the pediatrician explained. He wasn’t sitting like my friend’s baby, who was born in the same month. He wasn’t babbling. He wasn’t rolling over. Here’s what he WAS doing at 8 months – smiling – all the time.”
“He works so hard – at the things that are difficult for him. Like many children with autism, Matthew has low muscle tone, which means his body is floppy and he lacks coordination. He learned to walk after age 2, jumped at 6, and is still working on riding a bike at 9. He struggles with so many activities – from riding a bike to writing with a pencil, to speaking clearly. Yet, these things he must work on daily at school and in PT, OT and speech therapy. I don’t know about you, but when I’m not good at something, I avoid doing those things (like playing golf and cooking!) He has no choice, he’s got to work on the very things he is not good at. And guess what, he does it with a smile.”Amy McCoy